Denver NF Symposium

Today I was able to attend the Denver NF Symposium hosted about every 2 years by the Colorado Chapter of the Children's Tumor Foundation.  Thanks to Scott for staying home with the kids, our middle one was sick and we didn't want to "share" what germs he has with the kids at the kids time during the symposium.  I was able to see some familiar faces and met new friends as we are all on this NF journey.  This is a great time to network with other parents and support each other by listening, sharing experiences, and offer our stories/advice for someone headed out on a similar path.

The first talk from a wonderful doctor at the Department of Neurology at the Children's Hospital in LA covered plexiform neurofibromas, the basics and beyond.  This was a great plexiform refresher heading into T's appointment with the geneticist in Salt Lake City this week.  During her talk and talking with her during the break reinforced that we are heading in the right direction for T's 2nd opinion in SLC.  The doctors there are the experts in Travis' issues and will have the best options (there's not many) for his case.

The second talk described how learning disabilities are different in children with NF compared to the same in the general population.  While the Neuropsychologist giving this talk was on vacation during T's multidisciplinary clinic in July, she will be the neuropsychologist he'll see at his next multidisciplinary clinic and years to come.

We head out to Salt Lake City on Tuesday and T's appointments start Wednesday morning.  I'm encouraged knowing we are heading to see the doctors that have the best knowledge for T's issues.  We should be able to provide updates while we are in SLC.