Tuesday's MRI (Early Results) and Another Virus

Travis did great for his MRI on Tuesday, especially considering he hadn't had anything to eat Tuesday morning since he would be sedated. We dropped Nolan and Barrett off at school and ran a few errands, including shopping for his new NF cat, Blackie, and purchasing donuts for after the MRI. We arrived at imaging by noon and waited 45 minutes before being called back to the prep room, not this "Cars" room this time.

Definitely NOT the "Cars" room

IV started, he's the bravest person I know.

The nurses were great and listened to how Travis wanted the IV started (Travis sitting on the bed) and where to look first. We quickly moved to outside the MRI where they started the sedation and the MRI started around 2p. The scans lasted a little over 45 minutes and the tech brought T into the recovery room. Travis ate his Oreos while sleeping, as usual, although he did move his head to me quickly when I said Oreos. He drank about half the water and we left MRI recovery by 4p.  He ate his donut with sprinkles on the way home...yummy.

Sprinkled donut!!!

Travis was running a slight fever of 100.9 at discharge, so we figured something was coming. By Tuesday night, Travis' fever increased to 104, yet he remained in good spirits. His fever typically hangs out around 102 when the ibuprofen or Tylenol wears off, so he stayed home from school on Wed and today. He has a slight cough and sore throat, so when he woke up with a temp of 102.7 this morning, it was time to call the doctor. Dr. Swensen checked Travis this morning and Travis probably has a virus, lungs sound great and negative on the rapid strep test. We're to call if the fever goes up to 103+ again Friday night or cough gets a lot worse. Let's pray he's on the mend.

I talked with Dr. Viskochil on Wednesday afternoon to see if he received a copy of the local radiologist report. We know Travis' tumor volume is best captured by the volumetric analysis done at National Cancer Institute (NCI), but I was curious to see if anything jumped out to the local radiologists. Basically, it was the same report of no significant changes by the local radiologists. (I did learn the radiologist that did this reading is more a bone person than neuroradiologist...for whatever that's worth.) Thankfully and prayerfully, NO big changes observed locally. The CD of the MRI should be on it's way to NCI and the analysis this time should be quicker. We still have options to consider of other clinical trials and would need to have Travis off rapamycin for a period of time before starting a clinical trial.

We appreciate all the support and prayers for Travis and our family