It's hard to believe that it was a year ago on the 14th that Dr. Bellus at the Children's Hospital in Denver suspected Travis had a plexiform neurofibroma. In some ways, it seems like yesterday. Tuesday was an emotional day reflecting on this journey. It's been quite a journey over the past year, yet one that landed T in the best hands for his medical issues. For that, I'm very thankful.
Travis' rapamycin dose was slightly increased this week, the low levels were still below his target level. The good news from this is that T didn't need to have blood work done this week, they want to give the new dosage some time to "load" into his system. While we are having to increase the dose again, I am glad that the study is going on the conservative route to find the right dose for T. I'd rather have to do small increase increments to get to his target level than to have way too much medicine given. The doctors and staff put forth great effort to find the lowest dose for the desired target range.
Tuesday had some wonderful moments as well. We found out earlier this month that Nolan (our oldest) was selected to represent our local hockey association as a Colorado Avalanche Youth Skater. Nolan will lead the Avs onto the ice, stand with them on the blue line during the national anthem, and be introduced with the Avs starting line-up. On Tuesday we got confirmation of Nolan's date at the Avs game...Tuesday, January 18th vs the Vancouver Canucks. We are so thrilled for Nolan and excited for the family. The family will get to see and meet the Avs at their morning practice that day.
Anniversaries are hard sometimes even when the outcome is good, let alone when life is still uncertain. Enjoying all the fun times is what we want to remember.
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