Wow...Travis continues to do great while back on Rapamycin. I remember when he was in the clinical trial how fast the first 4 weeks flew by, 2010 End of Course 1 Exam. The same thing happened again this time as T sees Dr. Viskochil tomorrow morning for the end of course 1 exam. From what I can tell, so far so good. :) No mouth sores so far, hopefully this post won't jinx things.
Tomorrow morning is a routine blood draw and T's blood will be checked for the amount of Rapamycin in his system right before the next dosing time, same as before. This will be another fasting blood draw and he knows what's coming, yet he's looking forward to the donut after the "poke". T never ceases to amaze me.
On Friday, we have a meeting with his IEP team to see what gains have been made and goals for the upcoming year. The Neuropsychologist will also be at this meeting. Next week brings T's spring parent-teacher-student conference.
Thank you for your continued prayers, thoughts and support. We are so incredibly blessed.
So glad to hear its going well! T's a brave boy.
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