Saturday :)

Travis slept great last night, probably close to 11 or 12 hours from when he fell asleep to when he was ready to wake up. The nurses and techs checked on him during the night and he either didn't wake up or he went back to sleep pretty fast. He was pretty perky when he woke up, we'll take it!

He ate great at breakfast, first he finished off Fruit Loops and then pancakes. The doctors briefly talked about putting him on a probiotic, but after talking with the pharmacist decided against that plan. Travis' GI tract isn't "patent" (may have sores/tears in it from the rapid passage of stool - thanks Mom C for the explanation). This could allow the bacteria from a probiotic to enter T's bloodstream, definitely not the direction we want to head. Yogurt is ok since that bacteria is not as concentrated as in a probiotic. T's taking 3 antibiotics a day (Septra - for rapamycin even though he's taking a short break from rapamycin; Flagyl - for C.diff; Amoxicillin - for ear infection).

The C.diff started "exiting" T's body this morning, I'm so glad the nurses and techs take care of those occurrences. I took a shower in the pod tub room (shower and tub room for our part of the hospital) and T had a bout. He rang the button for the nurse and she cleaned it up. She said it was pretty big, but it didn't get on his clothes. If she thought that was big, she would have been astounded by what was repeatedly exiting T Thursday night at home.

The IV was placed in T's right hand on Thurs evening when we came back to the hospital and T is right-handed. He was getting frustrated the past few days since he couldn't play DS, iPad, eat, etc using his his right hand like he normally does (the tape wouldn't allow T to make a fist with his right hand or was uncomfortable at best). He was brought crayons and coloring pages, but he couldn't color with his right hand. I spoke with the nurse and asked if it would be okay to have Travis' IV moved to his left side. He was getting really frustrated and down since it was hard to do even some simple tasks. She said yes and the IV team came and placed an IV in his left hand. While he was upset about it at first, he's really playing with cars more tonight and his typical happy mood is returning. :)

Travis is eating better, but still needs to drink more fluids. He is still hooked up to the IV with the potassium, but not sure what will happen when he's left to take fluids on his own. His pediatrician stopped by this morning and said that he may get to go home Sunday depending how he does on his fluids, definitely playing it safe with discharge.

He's feeling better at the end of the day and that is great news. Not sure if it is from the 36 hours of the antibiotic to battle the C.diff or enough hydration or better electrolyte levels (no labs today) or more control of what he can do and play with since moving the IV. I don't care...I'm thrilled he's feeling better!!! :) He can have visitors.

Thank you for the prayers, thoughts, and support. I'm glad the timing of T's regular genetics appointment with Dr. Viskochil regarding the rapamycin wasn't any later, it could have been so much worse. Thank you God for the continued reminders that You have this under control and the right timing.