Goodbyes and Good News

Wow...we're down to under 48 hours in Cheyenne.  The past few weeks have been filled with goodbyes and thank yous.  We received support and prayers from many, many people over the past years.  Thank you seems so short, yet words cannot describe how much we appreciate all the support.  Looking through some of the pictures tonight reminds me how far we've come on T's NF journey and remembering all we've been through, some good/some hard. 

I know God has a plan for Travis and He continues to show us that we are on the right path for Travis' medical care.  We heard from the research coordinator today and Travis' rapamycin level for the end of course 7 was in range!  Praise God!  Travis' next blood draw will be at the end of course 8 at the end of June.

Some pictures of those that have helped us along the Cheyenne part of this journey; however, this is far from a complete list.  Without all the support from those in Cheyenne, Travis would not have been able to participate in the clinical drug trial and the plexiform may not have stabilized on its own.  We will miss each and everyone.

Travis and Tori, his physical therapist for over 2 years.  She was the one that got him to walk.

Travis and Tina, the nurse that did most of the blood draws.  She is the one that Travis said, "You're not a nurse, you're my friend."

Travis and almost all the nurses that helped at one time or another with his Cheyenne blood draws.

Travis and Dr. Dramko, his pediatrician.

We were able to join Barrett's class for their field trip at the Denver Zoo this Wednesday.  Travis was glad to see both sets of penguins and tell them "Goodbye".  Unfortunately, the zoo in Salt Lake City does not have penguins.

T telling some of the Humboldt Penguins bye.