Dr Viskochil heard back from NCI (National Cancer Institute) and the NCI doctor "could not identify a change in the tumor size" on Travis' MRI volumetric analysis. This is GREAT news!!! Praise God! The local neuroradiologist also could not detect a change. Dr. Viskochil also focused in are areas of Travis' tumor and felt the same way. Yes, Yes, YES!!!
Where we go from here...Travis will have another regular MRI in July and that MRI will be sent to NCI for volumetric analysis. The July MRI will provide a look into what the plexiform has done with a full 3 months off of the rapamycin. (Travis' previous MRI was Jan 5th and T stopped taking the rapamycin on Jan 11th, there is some time that the rapamycin remained in his system even though he was not taking the medicine.) Due to the great results, Travis will remain off the rapamycin.
Travis saw his orthopedic team at Shriners yesterday for a regular exam. Travis continues to make great improvement in his walking, balance, endurance, and maneuvering stairs, especially in the last several months. Mike Pond examined Travis and decided to have 2 x-rays done, one of the tibia and one of Travis from the waist down. Travis' valgus deformity (knock-knee) on the left side worsened over the prior 6 months; however, due to all the recent gains and improvements they will continue to watch T and not perform surgery at this time. Travis' right hip has gotten a little worse, but he is still doing good. The right hip isn't traditionally formed either, this has been mentioned before at orthopedic appointments, but it is more traditional than the left hip. Shriners also took clinical pictures to add to his chart, will be easier to remember what he looks like on the outside now. Travis returns to see the orthopedic team in 6 months.
We continue to enjoy the great memories from this past weekend. :) We continue to move forward with getting Travis ready for Kindergarten this fall. He is so excited he will attend the same school as Nolan and Barrett. We are working with the school to determine his teacher before the fall so we can work as a team to get the necessary accommodations in place.
Thank you for all the prayers and support for Travis and our family. God continues to work His miracles in our lives and guide the direction of Travis' medical teams. He placed us in contact with these incredible professionals and directed our move to Salt Lake City.
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