Thursday, January 13, 2011

Picture, Dosage Increase, and Blood Draws

Travis seems to be doing good with the recent dosage increase.  He's such a trooper through all of this.  Since his dosage increased, we start back over and have to have 2 consecutive week blood draws with the target level in range.  That means he'll have a blood draw this week and one again the end of next week.  Hopefully his numbers will be (and stay) in the target range.  With the blood draw next week, the geneticist would like to have an additional blood test run that can be done here in Cheyenne.  So far, so good on the diet changes and switches/substitutions.  He hasn't noticed a difference.  :)

Travis and the big screen at the Utah Jazz's practice facility where we watched the Texas Aggie game.
We received the press release from the Colorado Avalanche today about our oldest, Nolan, being the Avalanche Youth Skater.  The press release even mentions Nolan's advocating for his younger brother with Neurofibromatosis.  Way cool that NF was mentioned in the Avs press release.  We are so excited for Jan 18th!!

1 comment:

  1. That is totally awesome that they mentioned NF in the press release! Way to raise awareness you guys!

    I wish we could come to the game, I know its going to be awesome! Take lots of pics for me. I can't wait to see them! :)

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