NIH Trip - Short Update

Travis and I returned back to Salt Lake City tonight, quick trip to the NIH (and we're both tired). The doctor that does the volumetric analysis looked at the scans from earlier this month, but did not get a chance to do the measurements before she left on vacation. This means...more waiting. She did feel it looked stable and the research nurse and PA felt confident in the quick assessment. That combined with how T is fairing on the PEG (looks good and labs good), T will remain on the PEG at the same dose. We can always reassess if the volumetric measurements show something different.

Travis petting Viola at The Children's Inn

No donut, but brownie sundae works.

Thank you for the prayers, thoughts, and support. Time for sleep.